April 30, 2025 • Estimated Reading Time: 1 minute
Our research summaries provide insights into the latest scientific developments. Check back in our next newsletter for updates.
Do you have Gaucher disease type 3 (GD3) or care for someone who does? The IGA is looking for patients and caregivers from diverse backgrounds to join a new and exciting GD3 Community Advisory Board (CAB).As an advisory member, you’ll have the opportunity to share your experiences and views on a variety of topics—like research, clinical trials, and the everyday challenges people face. Your voice will help highlight what’s missing in treatment, care, and support, so we can work toward better solutions together. You will be able to advise researchers, pharmaceutical companies, and advocacy groups on ethical, cultural, and practical considerations, as well as support education and increase awareness efforts related to GD3 by establishing and strengthening global connections between patient/caregiver communities and professionals.If you are interested in joining the new GD3 CAB as an advisory member and think you can commit to quarterly or bi-monthly meetings online (90 minutes), please take a few minutes to complete the form expressing your interest by clicking the link below. Once submitted we will be in touch with more information via email. Thank you.https://form.jotform.com/250642015964051
A HUGE thank you to Chris Heredia and Riverside Rocks for an absolutely amazing event this weekend in Riverside, IL! We are so honored to have been a part of this fantastic fundraiser. A truly wonderful day raising money for two wonderful causes!
Several nonprofits offer financial assistance for Gaucher disease patients and families with a demonstrated financial need.
